Kathryn - NOT MUSCULAR DYSTROPHY.
NOT MUSCULAR DYSTROPHY.|
His CK test was normal -- it's not MD. THANK ALL THE GODS ABOVE AND BELOW. However, his TSH (thyroid stimulating hormone) was high, so he might be hypothyroid. He also might not be -- 70% of kids with a reading at his level come back normal on a rescreen -- but hypothyroidism can cause breathing problems and muscle weakness, and I'm hypothyroid and so is my mother, so it's really not out of the question. Fortunately hypothyroidism is quite easily and cheaply correctable, and even if he has a zebra instead of a horse (like if his TSH is high not because his thyroid is sluggish but because he has a pituitary tumor) it's still fixable, albeit with surgery.
After spending that hour in the Children's waiting room on Tuesday, a problem that, in its worst case, is fixable with a single uncomplicated surgery? I'll take it.
|Date:||September 14th, 2012 03:37 pm (UTC)|| |
My heart started beating again. So glad to hear where you are.
|Date:||September 14th, 2012 06:10 pm (UTC)|| |
So very glad to hear this.
That's wonderful news. :)
*hugs you in glad relief*
First, I'm glad to hear the good news.
Second - I've seen what almost looked like a marketing site for pituitary surgery, and they suggested that it *was* pretty safe and easy - maybe even outpatient - to fix pituitary tumors. Is it really that simple? Because I have hormonal issues that might be pituitary related, and so that's been kind-of on my mind.
|Date:||September 14th, 2012 11:30 pm (UTC)|| |
It depends on the surgery, obviously. The interesting thing about brain surgery is that a lot of the danger comes from 1) infection and 2) moving around or cutting through the thinky parts of your brain, which are on top. So for pituitary surgery, they usually go in through your nose, UNDER the thinky parts. If the surgery needs to be done on a part of the pituitary that is easy to access that way, then yeah, the impact can be fairly minimal -- particularly compared to your standard craniotomy procedure.
*hugs* yay for fixable-ness!
How did I never comment on this!
So glad to hear of an uncomplicated diagnosis that covers the symptoms.