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Kathryn - NOT MUSCULAR DYSTROPHY.
September 14th, 2012
08:15 am

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NOT MUSCULAR DYSTROPHY.
His CK test was normal -- it's not MD. THANK ALL THE GODS ABOVE AND BELOW. However, his TSH (thyroid stimulating hormone) was high, so he might be hypothyroid. He also might not be -- 70% of kids with a reading at his level come back normal on a rescreen -- but hypothyroidism can cause breathing problems and muscle weakness, and I'm hypothyroid and so is my mother, so it's really not out of the question. Fortunately hypothyroidism is quite easily and cheaply correctable, and even if he has a zebra instead of a horse (like if his TSH is high not because his thyroid is sluggish but because he has a pituitary tumor) it's still fixable, albeit with surgery.

After spending that hour in the Children's waiting room on Tuesday, a problem that, in its worst case, is fixable with a single uncomplicated surgery? I'll take it.

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From:purlewe
Date:September 14th, 2012 03:37 pm (UTC)
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My heart started beating again. So glad to hear where you are.
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From:nou
Date:September 14th, 2012 06:10 pm (UTC)
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So very glad to hear this.
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From:dandelion_diva
Date:September 14th, 2012 06:15 pm (UTC)
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That's wonderful news. :)
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From:browngirl
Date:September 14th, 2012 07:21 pm (UTC)
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*hugs you in glad relief*
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From:johnpalmer
Date:September 14th, 2012 07:37 pm (UTC)
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First, I'm glad to hear the good news.

Second - I've seen what almost looked like a marketing site for pituitary surgery, and they suggested that it *was* pretty safe and easy - maybe even outpatient - to fix pituitary tumors. Is it really that simple? Because I have hormonal issues that might be pituitary related, and so that's been kind-of on my mind.
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From:kathrynt
Date:September 14th, 2012 11:30 pm (UTC)
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It depends on the surgery, obviously. The interesting thing about brain surgery is that a lot of the danger comes from 1) infection and 2) moving around or cutting through the thinky parts of your brain, which are on top. So for pituitary surgery, they usually go in through your nose, UNDER the thinky parts. If the surgery needs to be done on a part of the pituitary that is easy to access that way, then yeah, the impact can be fairly minimal -- particularly compared to your standard craniotomy procedure.
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From:boogieshoes
Date:September 14th, 2012 11:26 pm (UTC)
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*hugs* yay for fixable-ness!

-bs
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From:gerimaple
Date:September 15th, 2012 12:01 am (UTC)
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hurrah for good news!
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From:tchemgrrl
Date:September 15th, 2012 12:24 am (UTC)
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What a relief!
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From:tigerbright
Date:October 2nd, 2012 11:12 pm (UTC)
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How did I never comment on this!

So glad to hear of an uncomplicated diagnosis that covers the symptoms.
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