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Kathryn - Milestones and address changes
November 15th, 2011
09:33 am

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Milestones and address changes
First of all, my old nwlink.com address is no longer good. New address is ktewson@gmail.com.

Alden is ONE YEAR OLD. Appalling. He's still not really crawling; at ten months, our ped was concerned about his gross motor development and referred us to an occupational therapist. He's in OT now once a week and making significant progress, enough progress that our old solution to keep him out of the catfood no longer works. :-) His delay appears to be the result of troubles coordinating the two hemispheres of his brain; he army crawls now, but he still wants to do it frog style (like he's swimming breast stroke) rather than lizard style (arm over arm, leg by leg), and he gets cranky when he has to do different things with different sides of his body -- like weight-bear on one arm while he reaches for the other. Fortunately, that's the sort of thing that OT is really good at addressing, and the therapist has assured me that there's no cause for concern as long as he's making progress. I myself was in OT for a couple years for sensory integration issues, so none of this is really that unexpected.

A tad more concerning is that he has some sensory issues, and what may be some cognitive/language issues. He doesn't play vroom-vroom with cars; he turns them over and flicks the wheels. He doesn't put things into cups or dump them out. He has some body-stim stuff that he does, it's hard to describe but involves putting his arms straight out and sort of bobbling his hands and shoulders around. He doesn't point, and his vocabulary is limited to ma-ma, da-da, na-na (sometimes nursing and sometimes Lily, he has trouble with the L sound) and the signs for more, milk, and food. He's also the most social baby you ever met in your whole life, with eye contact and turn-taking and responding to his name and if you say "Where's mama?" he'll look at me, and he smiles back and waves back and is distracted by voices and all that stuff, so classical autism is pretty obviously off the table. But cognitively he might just be a tad different, just his own little snowflake.

Which, given his parents, is not even remotely surprising. So I am resolute in my refusal to worry. This doesn't mean I don't worry all the time, it just means that I'm aware that my worrying is silly.

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From:lillibet
Date:November 15th, 2011 06:20 pm (UTC)
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Thanks for the pointer update.

Sounds like you have a good balance of voices-in-your-head and are getting lots of good professional opinions and interventions, so I'm not going to worry about either of you.

Mostly, I'll just offer sympathy. When we realized that Alice is cross-eyed and the doctor explained what's going on, the rational voices were telling me how early intervention will probably fix it entirely and hey, glasses are cute, while the emotional voices were screaming "There's something WRONG with my baby's BRAIN?!!! Aiieeeee?!!!" So I totally get you on this.
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From:toad_hall
Date:November 15th, 2011 06:54 pm (UTC)
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Happy birthday!!
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From:phillipalden
Date:November 15th, 2011 06:57 pm (UTC)
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I'm really glad to hear that he's doing well. I like that his first name is the same as my last name. Alden is a good name no matter how you use it.

I hope things continue to go well.
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From:tigerbright
Date:November 15th, 2011 07:21 pm (UTC)
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Happy birthday Alden!

Boychik's diagnosis is PDD-NOS and this all sounds very familiar, including the atypical elements.

Boychik's neurologist, at one point, thought that perhaps he should be tested for fragile X, but since the treatment is the same, it seemed silly to travel hundreds of miles to a hospital that could draw a marrow sample, especially given the pain and recovery time. And I think she's decided that he doesn't have enough of the symptoms now.
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From:kathrynt
Date:November 15th, 2011 07:23 pm (UTC)
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I was tested for fragile X while I was pregnant, and I'm not a carrier. Also Alden's sensory stuff is seeking, not avoiding. He loves textures and sounds, he dances to music, he eats EVERYTHING with enormous gusto, etc.
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From:browngirl
Date:November 15th, 2011 07:37 pm (UTC)
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Happy birthday, bambino!
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From:purlewe
Date:November 15th, 2011 07:39 pm (UTC)
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So pleased for the birthday boy. My neph turned 1 last week and we got to celebrate with cake. I raised a glass westwards in his honor. May he have many yrs of happiness!
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From:aberdeen
Date:November 16th, 2011 03:37 am (UTC)
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Good for you for not worrying. Also good for you for receiving services while you are not worrying. You already know everything I could tell you, and you're already doing everything I could suggest, so. Go you! And enjoy another year. (:
From:boojum
Date:November 16th, 2011 08:02 am (UTC)
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Happy birthday, Alden!
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From:tchemgrrl
Date:November 16th, 2011 08:56 pm (UTC)
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I find it incredibly difficult to walk that line of not-worrying while still advocating on behalf of the thing I'm not worrying about. Being conscious that I'm doing it has made it easier.

Sounds like he and Theo could spend a productive afternoon smiling and waving at each other.
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